I try and stay positive, I really do. When I shared that I’d recently been confirmed as having secondary progressive multiple sclerosis (SPMS) on my blog and on Instagram, everybody was absolutely brilliant, giving me so much support and praising me for working hard to keep going, despite the dark diagnosis. And I am generally… Continue reading Positive? Not Always…
I am very aware that I have been extremely quiet of late - a combination of holiday + kids off school + busy weekends + returning to work has left a very exhausted Jen! Today is the first day I have been able to have some 'me time' in a long while (the kids are… Continue reading Secondary Progressive MS – Confirmed
It's only Wednesday, and I have had a pretty eventful week so far. Many of you may know that I am currently off on long term sick leave from work and have been since May; I was struggling so much in regards to fatigue and mobility in work that I suddenly just felt that couldn't… Continue reading Back to Work and (Almost) Famous!
This is my last blog post in the 'This is My MS' series (see here for my post about my physical symptoms and here for my post about my mental health). I know that I am very nosy eager to hear about how others try to manage their MS and the symptoms they have, so I thought that I would… Continue reading This is My MS – Lifestyle
I've been meaning to write this blog post for a few days now... but it has been a hell of a lot more difficult to start than my previous one in this series (This is my MS – physical symptoms). It was easy for me to write about the physical symptoms of my MS -… Continue reading This is My MS – Mind
One thing that I have realised after living with multiple sclerosis for almost 25 years is just how variable it is. I was initially diagnosed as having 'relapsing remitting' MS (RRMS). I was never sure when the next relapse would arrive. At one point, I went a whole 8 years without a relapse, feeling great with… Continue reading This is my MS – physical symptoms
How is everyone getting on? As summer warms up (here in the UK, there has been a recent heatwave), I am reading more and more about how the heat affects many of us with chronic illness. I personally didn't struggle with the heat until about 5 years ago - now I am all about the… Continue reading Embracing the Need for Naps
I continue to be off work for the time being, awaiting my Access to Work report regarding adaptations and aids that may support me to remain in work. All this time off has done the world of good for my MS, I have to say. Unfortunately, I can't say that my symptoms have magically disappeared, but… Continue reading Cog Fog and Brain Zaps?!
It's been a couple of weeks since my last post... I seem to have lost a bit of my blogging 'mojo', so to speak. This is ironic, as I have a bit more time at the moment to blog due to being medically signed off work (as my Multiple Sclerosis symptoms are making it a struggle). I've… Continue reading Life Update: Symptoms, Work, Home
I have an app called 'Timehop', which allows me to see past posts and pictures that I have shared over the years on social media. I love it, as it will throw up pictures that I haven't seen in years, often reminding me of a specific time or of particular events that I haven't thought… Continue reading Throwback Thursday: Setting New Challenges