Living · Spoonie Parenting · travel

Taking Chronic Illness on Holiday

So, I have just returned from my summer holiday - which I was really looking forward to (10 days off work, yippee!), but also viewing with trepidation and worry about how I was going to manage as a person with a chronic illness (see this post). We decided to take the kids 'glamping' this year.  They… Continue reading Taking Chronic Illness on Holiday

Living · Spoonie Parenting · travel

We’re all going on a summer holiday…..

...... and I feel completely worried and apprehensive about it. A week 'glamping', save for the first night in a hotel in York. The kids have been so excited. They wrote their lists of things to take - marshmallows for s'mores, head torches for the forest - and even helped with the packing.  (I've had… Continue reading We’re all going on a summer holiday…..

Living · work

Making it work

Making Adjustments to Try and Make Things Easier Today is the first day of my new working week.  I work 3 days a week as a speech and language therapist, helping kiddies with complex speech and language disorders.  Until last week, I grouped my working days together - Tuesday, Wednesday, Thursday - with the idea… Continue reading Making it work



The dream of #1daywithoutpain is something that I have been thinking a lot about lately.  The recent warm weather, Hubs' busy wedding schedule (he's a photographer) and the school holidays have led to my MS symptoms flaring up big time - spasticity, fatigue, weakness.  I've been thinking a lot about how things used to be… Continue reading #1daywithoutpain