I am very aware that I have been extremely quiet of late - a combination of holiday + kids off school + busy weekends + returning to work has left a very exhausted Jen! Today is the first day I have been able to have some 'me time' in a long while (the kids are… Continue reading Secondary Progressive MS – Confirmed
It's only Wednesday, and I have had a pretty eventful week so far. Many of you may know that I am currently off on long term sick leave from work and have been since May; I was struggling so much in regards to fatigue and mobility in work that I suddenly just felt that couldn't… Continue reading Back to Work and (Almost) Famous!
This is my last blog post in the 'This is My MS' series (see here for my post about my physical symptoms and here for my post about my mental health). I know that I am very nosy eager to hear about how others try to manage their MS and the symptoms they have, so I thought that I would… Continue reading This is My MS – Lifestyle
One thing that I have realised after living with multiple sclerosis for almost 25 years is just how variable it is. I was initially diagnosed as having 'relapsing remitting' MS (RRMS). I was never sure when the next relapse would arrive. At one point, I went a whole 8 years without a relapse, feeling great with… Continue reading This is my MS – physical symptoms
It's been a couple of weeks since my last post... I seem to have lost a bit of my blogging 'mojo', so to speak. This is ironic, as I have a bit more time at the moment to blog due to being medically signed off work (as my Multiple Sclerosis symptoms are making it a struggle). I've… Continue reading Life Update: Symptoms, Work, Home
Even though I have been at work this week, I am still suffering from monumental jet-lag - when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and… Continue reading Who am I?
Some of my regular readers will know that I have recently been on a two week holiday to Florida with my family - my two kids, my husband and my parents. It was a long awaited trip (the kids have been asking every week, 'how many days is it until Disney?', for the past year),… Continue reading 5 Things I learned from my trip to Florida, as a person with a chronic illness
Things have taken a turn for the worse. I thought that I might have been having a bit of a 'blip', having a bad patch, so to speak. But this is the new me. The new me that lives under a cloud of stress and worry. After 19 years of being pretty much symptom-free, my… Continue reading Cloudy Days and Rainbows
A brilliant post by Rhiann from My Brain Lesion and Me about the isolation and loneliness of chronic illness. I completely understand how she feels, though it makes me feel very lucky indeed that I can still manage to get out of the house, perhaps not so easily or regularly or to do the things the… Continue reading Being a Prisoner to Chronic Illness
March heralds MS Awareness month. But what does this actually mean? In my life, I've found that most people are 'aware' of MS; they have a 2nd cousin twice removed who has it, or, as my husband used to think, 'it is something that affects your mobility... so you end up in a wheelchair'. Heck, I used… Continue reading March: MS Awareness Month