Just a quick blog post from me today, but one that I thought was important to write due to the snow troubles that we are having here in the UK right now.  As someone who spent her childhood in Canada, where they are super equipped to deal with the most adverse of weather conditions, it makes  me somewhat incredulous how much of a standstill the UK becomes whenever there is a little bit of snow.  The kids’ school has been closed for two days now, their extra-curricular activities have been cancelled, I wasn’t able to get into work 8 miles away yesterday and there are stories about cars being abandoned on local roads.

This is the first winter that I have really felt the limitations that my mobility difficulties as a result of Multiple Sclerosis (MS) has on me; if the environment isn’t prepared for cars to run, how do you think those that rely on crutches/scooters/walkers and wheelchairs fare?  Especially when their cars are out of action?  My scooter won’t get up the hill to our house due to the sheer amount of snow on the pavement.  This is the first time in a long while that we have had this level of snow; I have always been able to muddle through in previous years and of course my mobility has been worsening over that time.

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Me 8 years ago – no mobility difficulties at this time; baby no 2 on the way

Realising just how limited you are due to something as simple as the weather can bring up a myriad of emotions: frustration at the lack of access, grief for what once was, envy that others can do what you want to, guilt that it is stopping you being the parent you want to be…

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This year, baby no 2, now 7, sledging without me as I can’t get out

But…What if there is a way at looking at this in a positive way?  Ok, the poor weather and lack of access may mean that you are unable to leave home easily, but isn’t that the best excuse for cosying up in the warm, making the most of the sofa, of blankets and hot chocolate?  This is the perfect time for warm soups and books and duvet days and movies.  For board games with the kids, reading with them, crochet or craft and for naps.  We can’t make ourselves feel bad for the limitations that our chronically ill bodies place on us; it is not our fault.

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Photo by Alice Hampson on Unsplash

This is the time to look for support and solidarity – Facebook, Twitter and Instagram all offer the opportunity to connect with others going through the same, as do forums connected to your illness (try this one from the MS Society in the UK), which can help you feel not so alone or isolated.  Ask close friends who are able to walk to visit you at home if the weather and your energy levels allow.

These days will be short (hopefully!) I am already seeing snowdrops growing and the knowledge that it is now March makes me hopeful for warmer and longer days soon.  Spring is the perfect time for my MS – not too cold and not too hot – all I need to do is concentrate on that and it makes these difficult days easier to get through.

Wishing everyone a safe few days in this snow if you are in the UK.  For those of you who don’t have our weather problems, I hope that you have a lovely few days!

Jen 2

Cover Photo by Kacper Szczechla on Unsplash

0 Comments

  1. A great post, Jen. I can understand your frustrations at your limitations. Like you, I am stuck inside, I am usually out with my carer on a Thursday but am unable to go out, even to enjoy a quick walk or just enjoy the snow because of my problems with balance, my mobility and the adverse effect the cold has on my neuropathic pain. But like you, I am trying to make the most of it; I am enjoying watching the heavy flurries of snow landing on the ground covering everything in its sight as well as having the perfect excuse to wrap up warm with a good book. Whatever you decide to do today I hope you enjoy it spending time with your family xx

    1. Thanks Rhiann! It can be a bit hard when you’re used to going out, because you become a little bit stir crazy – I know I am! I am venturing out for the first time tonight to go watch my husband playing in a band, so fingers crossed my scooter works outside. The path seems to be a lot less snowy now 🙂

  2. Thx for the post – I am stuck in due to a migraine (MS related). Positive things for to focus on – hubby is home from work so playing in the garden with our daughter (8) and I have our big ginger cat snuggled up with me #alwaystryandlookonthebrightside

    1. Definitely best to always look on the bright side! I’m lucky that my husband is taking the kids out for sledging, so I’ve had a chance to read my books and chill 🙂 take care and hope it’s starting to thaw a bit for you.

  3. I was the person who drove through blizzards. I shoveled everyone out. Even after my husband’s hernia operation, I was the one in 2011 who dug us out. in 2015 I was told at work, we don’t expect to see you till March. Even a coating destroys me and for days.
    Years ago, my husband used to shovel a path from the station lot to the station – different jurisdictions s a pile in between. It’s frustrrating

    1. It is; I really hope that you’re managing to keep warm and cosy. It can be frustrating when everything changes – are used to be the one who loved to be out in the snow, but now it affects my muscles a lot with spasticity.

  4. Thank you for sharing this Jen. I am going to be honest, I did not realize it snowed in the UK. I know that sounds kind of silly, but I thought maybe the seasons were opposite of us in the US. I do know how hard the weather is on our bodies. I live in the south and they are never prepared for snow. Funny thing is, I grew up in the north where snow was no big deal at all! But, now the cold snowy weather makes me feel horrible!!! Weather changes causes me a terrible amount of pain. I hope the weather gets better for y’all soon and you start feeling well! Take care and do your best to stay warm!!

    1. Hi Alyssa! I’m also affected by the cold, luckily it doesn’t usually get too cold here in the UK, actually having snow doesn’t happen every year. It just tends to rain! Hope you’re managing to keep warm 🙂

      1. I am sorry the cold affects you, but I am glad it doesn’t get cold there too often. It has actually been unusually warm here lately, but I am not complaining at all! I hope your weekend is going well and you are staying as warm as possible!!!

  5. I know exactly what you mean. I’ve lived in Colorado and Montana with tons of snow. I now live in North Carolina and the entire state shuts down with an inch. It’s crazy, because I’m ready to keep going. I’m not as sensitive to cold as I am to heat. I literally melt. Have fun in the snow!

  6. It’s quite scary how dangerous the weather can be (both due to health and accidents on the roads), and how the country almost grinds to a halt in the smallest of ice & snow, let alone the situation many parts of the UK are facing right now. Keep holding on to those thoughts of warmer days… Caz xx

  7. They say we are likely to get this kind of storm too today here near Woodstock NY in the US. I hope not, but as long as it is snow and nothing worse, I will just stay indoors and be fine. Best wishes ot all–

  8. We were thoroughly miserable yesterday when we kept trying to “enjoy” it. So today we stayed in, sat watching it whilst enjoying a footspa and eating chocolate. Much nicer!

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